In 2011 the Eczema Priority Setting Partnership got underway. Eczema is a common condition yet there are numerous uncertainties in its treatment. More research is needed on how to treat the condition effectively, but it is unusual for patients and clinicians to set the research agenda. In order to involve both those who have eczema,… (read more)
Just before Christmas our website was re-launched. It was something that needed to be done because over recent months it became harder and harder to maintain and the only way around this was to start again. Some things have gone and others improved. We hope that you like the changes. Please let us know what… (read more)
Dermatology Nurse Consultant Sandra Lawton has been appointed to the NICE Quality Standard Topic Expert Group (TEG) for Eczema in Children. She previously worked on the NICE Guidelines for Children with Eczema in 2007 which will form the foundation for this next piece of work. The TEG group membership includes dermatologists, nurses, GP, pharmacist, patient… (read more)
Posted in Awards, NSGCCE, Profiles and tagged Colin Gibb Comments Off on Sandra Lawton appointed to NICE Quality Standard Topic Expert Group (TEG) for Eczema in Children
We are pleased to announce that we have another new service for you to get to grips with. Nottingham Children’s Hospital have produced a series of eight great information leaflets that deal exclusively with allergies. These leaflets compliment our own Patient Information Leaflets very well. To get access to them right now, go to the… (read more)
We have a new member on the team. Priya Mulji is a social network addict and has agreed to look after our latest site enhancement which is a presence on Facebook. If you have something you want to say then say it! You have so many ways to be heard now, don’t hold back! We… (read more)
One of our twitter followers has walked 630 miles to raise money for the National Eczema Society. On Good Friday, 22nd April 2011, a team of intrepid walkers led by Stephen and Roddy Jenkins, set out from the West Somerset resort of Minehead, on a walk skirting the South West coast. The team is undertaking… (read more)
If you, or someone close to you, are one of the almost 6 million eczema sufferers in the UK you know first hand the challenges associated with living with this unpredictable, painful and incurable condition. Exacerbated by a lack of research into available and effective treatments, one of the most frustrating aspects of eczema remains… (read more)
The results of the Softened Water Eczema Trial have now been released and are available on line. This trial has been going now for four years so well done to all those involved and whose time and effort directly affect the ongoing well being of eczema sufferers. To each of you a massive Thank You.
Patient Information Leaflet Audio Number 6 has now been released & we have now made all Audio PILs available as an MP3 file for downloading. This means that you can take them with you wherever you roam. Wether you listen on an mp3 player or an iPhone/iPod/iPad or even if you have printed out the… (read more)
Sandra Lawton has been presented with the prestigious Stone Award, by the British Dermatological Nursing Group, for her contribution to dermatology nursing in the UK over 23 years, all of it based at the Queens Medical Centre site in Nottingham. During this time her practices have be adopted throughout the UK. Sandra is the ninth… (read more)
Today we have great pleasure in launching our latest project, Audio Patient Information Leaflets (APILs’s). To compliment the current batch of printable PILS, we have started to transfer them into audio format. As this takes about 3 hours for each one they will be trickle fed onto the system so keep looking. The first three… (read more)
Have you heard of the FLAME study (Flares and Antibiotics in the Management of Eczema)? This is a study which is aiming to establish whether some “infected” flares should be treated with antibiotics, or not. NHS funded researchers based at the Universities of Bristol, Nottingham, Southampton and Portsmouth are working together to develop a study… (read more)
Its been a while in the making but now it’s here. We think that it is a real improvement on the old site format which had served us very very well since 18 July 2005. Over the years the site has been prodded and poked with bits being added and bits being taken away, all… (read more)
Posted in NSGCCE, Site Improvements and tagged Colin Gibb Comments Off on Welcome to the new website for the Nottingham Support Group for Carers of Children with Eczema
A new study into the use of emollients on babies from birth is being undertaken by the Centre of Evidence Based Dermatology at the University of Nottingham with the aim of finding out if such usage will prevent childhood eczema from developing. For this study lots of babies are needed. If you are pregnant and… (read more)
The NSGCCE was today confirmed as a stakeholder organisation for the “Food allergy in children” guideline which will be produced by the National Institute for Health and Clinical Excellence. This is a tremendous achievement for us and means that you will be able to comment on this guideline in due course. We will of course… (read more)
Today see’s the publication of the latest Patient Information Leaflet. Written by Amanda and validated by the professional team, this leaflet gives 10 valuable tips on ways to look after your eczema during the winter months. Everything from Moisturisers to shampoos to sunscreens. PIL 28 – Caring for Eczema During Winter is here.
Our very own Amanda Roberts recently had an interview with Nottingham local radio Heart 106 where she spoke about her very successful Twitter service. You can listen to that interview right now on our podcast page.
Congratulations have to go to our own Professor Hywel Williams who has been appointed to a new national role to fund research that can bring improvements to health for the benefit of the patients of tomorrow. Professor Williams will become the new chair of the National Institute of Health Research, Health Technology Assessment (NIHR HTA)… (read more)
Congratulations have to go to Amanda who has just achieved her 1000th follower on her very successful Twitter pages. Her next goal, which we fully expect her to break, and very soon, is the 6000 tweets. Only 23 to go. Well done Amanda. After a flurry of activity from Belarus, The Cook Islands and Zambia… (read more)
An event aimed at educating both carers and healthcare professionals about eczema was held in the postgraduate building of the Queens Medical Centre in Nottingham on Thursday 17th September 2009 under the joint auspices of the Nottingham Support Group for Carers of Children with Eczema (NSGCCE) and Nottingham University Hospitals NHS Trust. Stands included Current… (read more)
We have just launched our latest free service. A toolbar for Internet Explorer, Firefox and Safari web browser users. By clicking the “Download Toolbar” button on our website you can install a toolbar that will give you instant access to our Podcasts, Newsfeed’s and Twitter services without being on site plus a lot lot more…. (read more)
Just a reminder that our Eczema Awareness day is fast approaching. It will be held on 17th September, 2009 10-12 noon and 1pm-3pm at the The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital. Its going to be a fantastic day for all who attend and with access to the professionals how can… (read more)
We have just launched the latest in our series of Patient Information Leaflets. The latest PIL is about Discoid Atopic Eczema. What it is and how it differs from ordinary atopic eczema. It is available now and can be downloaded free. Just go to the “Information Leaflets” page and click on “The Discoid Pattern of… (read more)
Following on from Professor Hywel Williams Radio Nottingham interview with John Holmes we are now able to bring you that interview and the BBC Radio 4 Case Notes programme in the form of podcasts. A podcast, for those that don’t know, is a way of making available, via the internet, audio and visual material without… (read more)
The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society’s Eczema Week 19 to 27 September 2009. The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is the venue and it will be open… (read more)
The radio 4 medical programme Case Notes will be coming to the Queens Medical Centre in Nottingham on Thursday 30 July to record a programme on eczema and eczema research which will be broadcast on Tuesday 4 August. It is intended that Professor Williams, Sandra Lawton, Karin Koller and a SWET trial participant, and Amanda… (read more)
NSGCCE Awareness Day Thursday 17th September, 2009 The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society’s Eczema Week 19 to 27 September 2009. The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is… (read more)
Ask the Experts for April has now been published. The four questions this month are answered by Nurse Consultant Sandra Lawton. The first question is attracting a great deal of interest at the moment. It’s all about the use of bleach baths as a way of controlling eczema. To get your copy of the answer… (read more)
Another facility has just been added to the website to make life a little easier to find what you are looking for. It is now possible to do a site search. On almost all pages at the top right is a search box and all you need to do is put in some search criteria…. (read more)
Within the Nottingham Support Group for Carers of Children with Eczema we have direct access to some very skilled people who have devoted their lives to the cause. We have now completed all profiles with the inclusion of Dr Ruth Murphy. You can review all our team profiles from the Profiles page.
The Centre of Evidence-Based Dermatology ( CEBD ), which is based at The University of Nottingham, which has an international reputation for skin research and evidence-based practice, has been short listed for an award from the British Medical Journal. They are amongst five leading research groups that have been short listed in the category for… (read more)
Today we have launched on “Twitter” under the user name of “eczemasupport”.For those that are unfamiliar with the service that it provides, Twitter is a social networking and micro-blogging service that allows its users to send and read other users’ updates (known as tweets), which are text-based posts of up to 140 characters in length…. (read more)
Helen Nankervis of the Center of Evidence Based Dermatology at the Queens Medical Centre in Nottingham, has submitted a summary of her work which looks at “Prioritising research questions and reducing uncertainties in the treatment of people with eczema”. This study is part of a grant from the National Institute of Health Research for 5… (read more)
Thanks to Amanda for coming up with the ideas for our site. Because of her efforts, we are now able to bring you yet another service. “What the Papers Say” is a service that will bring the papers to you. When we find anything of note being reported in the press, we will publish the… (read more)
Dr Sinead Langan of the Queens Medical Centre Nottingham has submitted a summary of her work into what environmental factors cause “flares” of eczema. This study makes some interesting observations in exposure to 7 conditions and a 3°C change in temperature. Click here to see her findings.
In our bid for continual improvement, our local eczema team has agreed to try and answer your questions. Each month a member of the team will pick some of the best questions and share the answers online so that others can benefit from the information. These answers will first be published in the email alert… (read more)
Within the Nottingham Support Group for Carers of Children with Eczema we have direct access to some very skilled people who have devoted their lives to the cause. You can see profiles on these people and what they have done and continue to do for the group and the eczema community at large on our… (read more)
NEXT WEEK! Monday 15th to Friday 19th September 2008 is the NLH National Knowledge Week on Atopic Eczema This is the second National Knowledge Week on Atopic Eczema organised by the NLH Skin Disorders Specialist Library. It includes the 2008 Annual Evidence Update on Atopic Eczema, a search for new systematic reviews published since the… (read more)
Our very own dermatology team have won the prestigious British Dermatological Nursing Group, Team of the Year 2008 Award. Congratulations to Sandra, Coleen and Gill on a fantastic achievement. Click here to read the complete story.
The Nottingham Support Group for Carers of Children with Eczema are pleased to announce that from today we are launching a fantastic new and free email alert service. This is a service that will deliver directly to your inbox, information that is relevant to children’s eczema as it becomes available to us. This information will… (read more)
In our efforts to keep things up to date we have introduced a new page on the site which lists advisory notices that are received from government and other authorised agencies. Click here to view the new Advisory Notices page.
The National Eczema Society helpline has new contact details. To talk to someone at the Society call 0800-089-1122. The helpline is open from Monday to Friday 8am to 8pm or you can email them at email@example.com. The National Eczema Society web address is www.eczema.org.
Queens Medical Centre Websites: During the reorganisation of the QMC web sites it was agreed that the NSGCCE would take over the responsibility for maintaining the Patient Information Leaflets (PIL’s) that relate to children’s eczema. We are currently updating these and as they are completed will be made available via our redesigned downloads page. The… (read more)
The National Patient Safety Agency (NPSA) is alerting all healthcare staff involved in the prescribing, dispensing or administration of paraffin based skin products of a potential fire hazard. To read the full report click here.
Up to 1 in 3 of our children and 1 in 12 adults have eczema. The society provides information and support, funds research into treatments and possible cures and works to dispel myths so those who have eczema need not feel stigmatised, guilty or isolated. As part of National Eczema Week, the society Chief Executive,… (read more)
Congratulations to Sandra Lawton who has been granted the title of “Queens Nurse”. This is the first time in over 40 years that the award has been given by the Queens Nursing Institute. Click on the QNI logo to get an insight into this truly inspirational lady and what she has done for all eczema… (read more)
The website for Eczema Scotland has just been launched. This will allow those in Scotland to access their own Eczema organisation and support groups more directly than before. Eczema Scotland exists to further the aims in Scotland of the National Eczema Society (NES) and to work towards improving the care of those in Scotland affected… (read more)