Autism – Some thoughts from Twitter ….

The comments below are a selection of tweets taken from our Twitter account, eczemasupport, and managed brilliantly by Amanda. Caution – some of the tweets expressed come from the heart! The views expressed are those of the individual twitter account holders and are not necessarily the view of the NSGCCE or any of its associates.

https://twitter.com/phaedrajayne/status/1032983366654734337

I’m interested in obtaining patient experience on treating and managing eczema in those who are diagnosed with Autism or a sensory processing disorder in part of qualitative research. Anyone able to guide me in the right direction?

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https://twitter.com/organisdchaos/status/1035989967103778816

My son has eczema and has been diagnosed with autism, I thought a lot of the issues early on were eczema related but now looking back I realise the autism played a great part. Any questions let me know.

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https://twitter.com/organisdchaos/status/1035992524974903297

Yes, it’s always been a struggle, he doesn’t like the feel of the heavier ointments which are sometimes necessary, also bathing is an absolute nightmare (he’s nearly 12) refuses outright or procrastinates so much an entire day will go by. Mainly he hates the feeling of the cream

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https://twitter.com/organisdchaos/status/1035995121286823937

He tolerates creams which sink in quickly, yes smell is a big issue too. His skin has improved over the last few years and I can use fragranced creams on him occasionally, which he absolutely adores….Shea/ cocoa butter especially.

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https://twitter.com/organisdchaos/status/1035995415152394242

Many of the steroids have off putting smell too, for him, although I don’t really notice it.

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https://twitter.com/organisdchaos/status/1035999037823115265

The amount of times I’ve had to go back to the GP or dermatologist, I can’t count, but they’ve been very understanding and have offered different creams. Also it appears that using the same product for too long reduces it effectiveness, so I would get it changed

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https://twitter.com/organisdchaos/status/1035999331294298113

Also the skin changes over the seasons, so what might help in the winter doesn’t necessarily work in the summer and vice versa.

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https://twitter.com/honicoco1/status/1036000131261378560

Im not aware of any direct link with eczema and autism but may be possible need to look at the research

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https://twitter.com/phaedrajayne/status/1036003811163287552

Thank you for getting in touch! When you say his autism played huge part, is this in relation to his intolerance and/or beyond that? I’m interested in how sensory stimulation (stimming, such as hand flapping and body focus behaviour) plays a part in treatment and management?

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https://twitter.com/phaedrajayne/status/1036004798326296577

Specifically interested in the links between itch/scratch cycle of eczema and skin related self-stimulating behaviour such as skin picking etc. which is stereotypically common in ASD. Is this something you and your son have experienced?

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https://twitter.com/organisdchaos/status/1036136576668065793

Yes definitely. No amount of telling him not to scratch, or trying to use diversions helps. He picks his skin because he doesn’t like it when it’s not even, not entirely because of the eczema more out of the sensory needs

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https://twitter.com/organisdchaos/status/1036137645141905413

Like chewing and biting, and putting things in his mouth, he picks his skin without realising it. When asked his reply is ” I’m just taking the bits off that are sticking up” . He likes touching things that are smooth or soft, and spends a lot of time rubbing his nose on my face

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