Eczema a Minor Condition! Some thoughts from Twitter ….

The comments below are a selection of tweets taken from our Twitter account, eczemasupport, and managed brilliantly by Amanda. Caution – some of the tweets expressed come from the heart! The views expressed are those of the individual twitter account holders and are not necessarily the view of the NSGCCE or any of its associates.

https://twitter.com/eczemasupport/status/1029811211926470657

#eczema a “minor” condition? Try living with it. It is uncomfortable, disruptive of life, work and family and its episodic nature makes it bewilderingly unpredictable @NHSEngland @NHSNottingham @rcgp

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https://twitter.com/My_Hand_Eczema/status/1029853493643956224

#eczema a “minor” condition…Where did this quote come from, not someone who has eczema, or has lived with an eczema sufferer that’s for certain. http://www.handeczema.co.uk  #eczema

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https://twitter.com/spidermanmsy/status/1029817272779636737

This REALLY F#CKS ME OFF. Who the hell describes/has described Eczema as a minor condition?

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https://twitter.com/spidermanmsy/status/1029818165600104449

On 2nd thoughts, as professed by surgeon at The Christie when inserting hickman line, he said mine was ‘toughest’ flesh he had to slice through. No jokes about thick skin please, but tell me who said this & I’ll do more than show them thick skin.

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https://twitter.com/spidermanmsy/status/1029824731392954368

Last tweet forgot to add (due to outrage) the surgeon concerned said that was throughout his whole 25 years as a surgeon…never came across a patient with skin as thick as mine.

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https://twitter.com/EczemaTales/status/1029840153177743363

Not someone who has lived with it that’s for sure!

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https://twitter.com/EczemaTales/status/1029840451552141320

It’s exactly this narrative that probably leads people to develop further psychosocial issues around their skin…

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https://twitter.com/Uncle_Tom_III/status/1029841662762278912

A few years ago I challenged my GP surgery. They put up poster saying #eczema was a minor condition and to consider self help. It was to make better use of appointments! Had a row over it, I won. Poster amended. If GP’s think of it as minor, what hope do we have

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https://twitter.com/ckbridgett/status/1029986604025356288

….still there on the internet: “Your pharmacy may be able to help with: mild skin conditions, such as #acne, #eczema, #psoriasishttps://www.nhs.uk/live-well/healthy-body/common-illnesses-your-pharmacist-can-help-with/#minor-ailment-scheme

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https://twitter.com/EczemaTales/status/1029994563182649346

Exactly why so many of us feel ashamed about our skin! It’s “just eczema” so we aren’t allowed to make it more

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https://twitter.com/EczemaTales/status/1029994878070124544

Whoever wrote this obviously hasn’t experienced these “mild” skin conditions!

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https://twitter.com/WokStation/status/1029811366079733761

Anyone that thinks #eczema is a mild condition needs to try living with my hands.

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https://twitter.com/My_Hand_Eczema/status/1030138683486363648

Don’t get me started again. For sure it is not life threatening, but it is not a minor condition for those who suffer with it. The psychological effects can be very serious. http://www.handeczema.co.uk  #eczema

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https://twitter.com/EczemaTales/status/1030154580720529408

The suicide rates are higher than general pop for atopic dermatitis so there is a potential for it to be life threatening…eczema can vary greatly too so I wonder if people see it in a “mild” form like one patch which someone can manage and hunk that’s the same across the board

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https://twitter.com/Dubai_allergy/status/1030184059505389568

If primary care took eczema more seriously would some stop advising parents of children who scratch all night to tie their hands down! Hmmm doing very little for the itch!

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https://twitter.com/ASBO_Allstar/status/1030189307573751808

We used to bind me sons hands like a boxer to stop him scratching in the night… If we didn’t there was blood everywhere in the morning

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https://twitter.com/alwaysrachel934/status/1030196485739237376

People don’t realise how serious eczema can be and it grinds my gears when I get shrugged of as “only having ezcema”

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https://twitter.com/ASBO_Allstar/status/1030197003593109505

I was guilty of thinking the same until my son developed it, I hadn’t appreciated how extreme and debilitating it can be…. I was really ignorant as to how harsh living with the effects could be

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https://twitter.com/EczemaTales/status/1028902549129240576

I got severe eczema at 16. There was no support for the emotional side, though it was the hardest part to deal with. I wasn’t “clinically” unwell but I needed something. What support is available now years on? Do we assess mental health at every consultation in dermatology?

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https://twitter.com/eczemasupport/status/1028947269322788865

I suspect psycholgical support is largely ignored #eczema

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https://twitter.com/c_liddiard/status/1029075372367863809

Sadly I agree. My daughter is 13 and has had chronic eczema since birth. Some of the treatments suggested are hard for a young girl to cope with esp at school. Our eczema nurse is fab but doesn’t seem to get that #eczema

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https://twitter.com/eczemasupport/status/1029250194347581440

Do you think derm nurses need more psychology training or is it that they need more time (or both)? #eczema

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https://twitter.com/c_liddiard/status/1029267755856523264

Yes I’d say both. As I said the specialist nurse we see is so lovely but effects on self esteem are very underrated. It’s hard enough being a teenager!!

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https://twitter.com/c_liddiard/status/1029269178853806081

It’s things like moisturise with thick creams many times a day and wear clay / ictopaste bandages under school uniform. They’re so messy!! Thanks for the positive comments Selina, you made Emily smile. I’m only an eczema carer, you understand it / her better than me

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https://twitter.com/drf_latheef/status/1029269893978484736

Sorry 2hear this Selina- empathy & understanding are crucial 2 successfully manage Eczema & sadly effect on quality of life is often overlooked! As @eczemasupport has alluded to, sometimes it’s lack of time & tools like DLQI are good but dedicated psychological support is needed!

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https://twitter.com/EczemaTales/status/1029363758513246209

I think even if time is limited, engaging fully and empathising can be important. Very different to a consultant looking at their computer throughout…difference across professionals of course but just asking someone some solution focused questions could be great!

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https://twitter.com/EczemaTales/status/1029364492298346507

Not everyone would meet criteria for specialist support but I think it’s about services already available creating small ways to be more psychologically minded (ie. dermatologists choosing to learn some therapeutic skills to support their interactions), having drops ins etc

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