What do I know about eczema? Well, not an awful lot to be fair…
I know how to live with it. I know some of the things that trigger my eczema and i am 100% confident that I could still dream up ways to scratch even if you took away my hands, arms and toes!
What I don’t know is enough about the background to eczema – basically my awareness level currently stands at: “Oops, was that a bus that just hit me?” (thats “not” very aware for those who are struggling).
My awareness level is so low because I’ve lived with eczema since birth. Of course i didn’t actually realise i knew so little until a dermatologist asked me what i knew – my best answer was a sarcastic one about it itching! So for the last 24 years I’ve learned to live WITH eczema, I’ve learned that flare ups do happen and that they will go away eventually. I’ve also learned that other people don’t understand eczema and that goes right from kids (in school I got the whole don’t come near me it’s catching rubbish right to being called an Eczema Man, as in X-Men the cartoon – genius!) right through to adults which lead to my first rant that you may have read!
I now know through the help of others (mainly Twitter – thanks Amanda) and by researching various places on-line that the trick to eczema is not to learn to live with it, but to learn to live WITHOUT eczema, something I never thought possible!
My idea is to tell you what I THINK I know and then you can either tell me I’m right/wrong or I’ll be carrying on looking into things and I’ll report back to you and tell you more – either way, we all win! The main thing though is to raise awareness and hopefully get people talking to each other (or me – my email address is at the bottom if you click my name) as talking has certainly helped me 🙂
Think of this as riding along on the Itchy Scratchy Express to Enlightenment from somebody who may well be very much like you – Clueless (for now!)