Archive for 2010

Ciclosporin has improved my eczema quite considerably

Please allow me to introduce myself. My name is Huw, I’m 42 years old, and I work in primary healthcare. I’ve suffered from eczema for as long as I can remember, and spent several months in hospital, several times, because of it when I was younger. Around eighteen months ago, I went to my GP… (read more)

The teenage girls guide to looking beautiful

Ok, so I was about 14 when my eczema got really bad. Mother was in a frenzy. Nobody knew what to do and everyone was stressed out because I was stressed out. My poor family. GCSE’s were approaching so that added extra stress. In all those moments I just wanted someone to hold me and… (read more)

Eczema and Bullying

When I was in primary school I used to get bullied by people I called my ‘friends’. They weren’t but I was extremely naive and, like most other kids in primary school I wanted to be popular and liked by everyone. Little did I know that being ‘best’ friends with the ‘in’ crowd would make… (read more)

You are amazing and you are beautiful …

I have always suffered from mild Eczema on my arms. When I was about 14 it became uncontrollable. It was really distressing experience, very painful and traumatic. There were days I would not want to just hide, not get out of bed and bury myself from the world. 3 showers a day to stop the… (read more)

An Interesting Difference – Reactions to Illness

As you may be aware, I suffer from Chronic Fatigue Syndrome/ME and Irritable Bowel Syndrome. These are “invisible illnesses” – the symptoms aren’t visible to you. I don’t have a missing arm, I don’t have lesions all over my face, and to look at me you’d probably think I’m just really hung-over. I’d gotten used… (read more)

Monkey Massage

Our youngest daughter, now four, contracted pneumonia when she was eight months old. My wife and three children were on holiday in Cornwall when she was taken ill. The condition worsened and developed into bronchiolitis, and she was taken into hospital where she was given antibiotics and placed on oxygen for four days and nights…. (read more)

Anna’s Referral Story

I’m Anna Burton and have met you [Amanda] at support group meetings when they used to be held and I went to the eczema open day last September. Both my children Daniel and Abigail are under Sandra and we are regular visitors to her. Both children suffered with eczema from within weeks of birth but… (read more)

Are our NHS GPs failing us?

When we or our children are diagnosed with Eczema, it can almost seem like an isolated experience. When you feel that uncontrollable urge to itch and non-eczema sufferers do not seem to get why you can’t “just stop”. It can also be a depressing experience not only for aesthetic reasons and your self esteem but… (read more)

Spring Fundraising

My name is Roddy Jenkins and I have eczema. As a sufferer practically all my life of mild to severe atopic eczema – undergoing various treatments of creams, ointments, emollients, oral medication and several hospital stays – I decided that I wanted to help raise people’s awareness of this skin complaint. They say the skin… (read more)

Sandra wins Prestigious Stone Award

Sandra Lawton has been presented with the prestigious Stone Award, by the British Dermatological Nursing Group, for her contribution to dermatology nursing in the UK over 23 years, all of it based at the Queens Medical Centre site in Nottingham. During this time her practices have be adopted throughout the UK. Sandra is the ninth… (read more)

Audio Patient Information Leaflets Launch

Today we have great pleasure in launching our latest project, Audio Patient Information Leaflets (APILs’s). To compliment the current batch of printable PILS, we have started to transfer them into audio format. As this takes about 3 hours for each one they will be trickle fed onto the system so keep looking. The first three… (read more)

Comments from a Teenage Eczema Sufferer

Here are my comments/notes on the Teenage Eczema Pamphlet • The layout and everything is really good, and • You’ve put in all the right headings Also, just in case you want an opinion from someone who suffers from eczema as a teen: Take Control Fortunately I’ve had a lot of help with this area… (read more)

The Itchy & Scratchy Show

My oldest son has had eczema for the whole of his life – 10 years. Today’s visit to the doctor has prompted me to write this blog as I feel the need to offload a little about how frustrated I am and how much of a failure I feel for not being able to save… (read more)

Are you a Teenager with Eczema?

If you are a teenager with eczema then we have just the thing for you. We have just completed our latest Patient Information Leaflet specifically aimed at the teenage community. As an eczema sufferer you will find useful information about dealing with everything from Acne, Makeup and Jewellery, Shaving and even Tattoos, Exams and Career… (read more)

Our researchers need you…

Have you heard of the FLAME study (Flares and Antibiotics in the Management of Eczema)? This is a study which is aiming to establish whether some “infected” flares should be treated with antibiotics, or not. NHS funded researchers based at the Universities of Bristol, Nottingham, Southampton and Portsmouth are working together to develop a study… (read more)

Welcome to the new website for the Nottingham Support Group for Carers of Children with Eczema

Its been a while in the making but now it’s here. We think that it is a real improvement on the old site format which had served us very very well since 18 July 2005. Over the years the site has been prodded and poked with bits being added and bits being taken away, all… (read more)

A Girl’s Wedding Day

So the moment came that every girl waits for…many years of mental preparation via Disney…yes you are right girlies! I am getting married! now apart from all the obvious I have to plan, every woman knows that the most important aspect of the day for us is the DRESS!! Last thing any girl (should say… (read more)

New Eczema Study Is Looking For Pregnant Ladies

A new study into the use of emollients on babies from birth is being undertaken by the Centre of Evidence Based Dermatology at the University of Nottingham with the aim of finding out if such usage will prevent childhood eczema from developing. For this study lots of babies are needed. If you are pregnant and… (read more)

NSGCCE wins N.I.C.E. Stakeholder Status

The NSGCCE was today confirmed as a stakeholder organisation for the “Food allergy in children” guideline which will be produced by the National Institute for Health and Clinical Excellence. This is a tremendous achievement for us and means that you will be able to comment on this guideline in due course. We will of course… (read more)

Eczema and Confidence

Eczema affects confidence. Fact. In fact I’ll go as far to say the amount of eczema I have is directly proportional to the lack of confidence I have. It dictates how well I sleep, how well I feel, what mood I’m in and what I wear. On the back of this I have been known… (read more)

You’re not really allergic to that…

I do like to rant every now and then… This time, it’s about my food intolerance to wheat/gluten. I live a wheat free life style because after blood tests the docs told me I shouldn’t eat wheat, to be honest I don’t actually know if eating wheat affects my eczema that much but since I’ve… (read more)

I’ve been itching to share this!! (Expect many, many, more bad eczema related puns)

Recently I came to have an epiphany of sorts… in a nutshell my eczema was so bad I was in hospital for 3 days for treatment and recovery. That was my second visit in 4 months and a rather big wake up call as it was the worst flare up I’ve had since childhood! That… (read more)

Winter Care Patient Information Leaflet

Today see’s the publication of the latest Patient Information Leaflet. Written by Amanda and validated by the professional team, this leaflet gives 10 valuable tips on ways to look after your eczema during the winter months. Everything from Moisturisers to shampoos to sunscreens. PIL 28 – Caring for Eczema During Winter is here.

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