Archive for 2009

Climb Aboard The Itchy Scratchy Express

What do I know about eczema? Well, not an awful lot to be fair… I know how to live with it. I know some of the things that trigger my eczema and i am 100% confident that I could still dream up ways to scratch even if you took away my hands, arms and toes!… (read more)

Rant “Eczema isnt a real illness”

You try living with it for ONE day… One day I challenge you! It’s not other peoples fault that they have this attitude because they don’t know any better but boy does it annoy me that A LOT of people don’t count Eczema as a serious illness. Where do I start with this rant? I… (read more)

Amanda talks to Heart 106 about Twitter

Our very own Amanda Roberts recently had an interview with Nottingham local radio Heart 106 where she spoke about her very successful Twitter service. You can listen to that interview right now on our podcast page.

Congratulations to Professor Hywel Williams

Congratulations have to go to our own Professor Hywel Williams who has been appointed to a new national role to fund research that can bring improvements to health for the benefit of the patients of tomorrow. Professor Williams will become the new chair of the National Institute of Health Research, Health Technology Assessment (NIHR HTA)… (read more)

We’ve Done It

Congratulations have to go to Amanda who has just achieved her 1000th follower on her very successful Twitter pages. Her next goal, which we fully expect her to break, and very soon, is the 6000 tweets. Only 23 to go. Well done Amanda. After a flurry of activity from Belarus, The Cook Islands and Zambia… (read more)

NSGCCE Awareness Day 2009 Update

An event aimed at educating both carers and healthcare professionals about eczema was held in the postgraduate building of the Queens Medical Centre in Nottingham on Thursday 17th September 2009 under the joint auspices of the Nottingham Support Group for Carers of Children with Eczema (NSGCCE) and Nottingham University Hospitals NHS Trust. Stands included Current… (read more)

Launch of the NSGCCE Tool Bar

We have just launched our latest free service. A toolbar for Internet Explorer, Firefox and Safari web browser users. By clicking the “Download Toolbar” button on our website you can install a toolbar that will give you instant access to our Podcasts, Newsfeed’s and Twitter services without being on site plus a lot lot more…. (read more)

NSGCCE Awareness Day 2009

Just a reminder that our Eczema Awareness day is fast approaching. It will be held on 17th September, 2009 10-12 noon and 1pm-3pm at the The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital. Its going to be a fantastic day for all who attend and with access to the professionals how can… (read more)

PIL -The “Discoid” Pattern of Atopic Eczema

We have just launched the latest in our series of Patient Information Leaflets. The latest PIL is about Discoid Atopic Eczema. What it is and how it differs from ordinary atopic eczema. It is available now and can be downloaded free. Just go to the “Information Leaflets” page and click on “The Discoid Pattern of… (read more)

NSGCCE Email Alert Service – Podcasts

Following on from Professor Hywel Williams Radio Nottingham interview with John Holmes we are now able to bring you that interview and the BBC Radio 4 Case Notes programme in the form of podcasts. A podcast, for those that don’t know, is a way of making available, via the internet, audio and visual material without… (read more)

NSGCCE Awareness Day Thursday 17th September, 2009

The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society’s Eczema Week 19 to 27 September 2009. The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is the venue and it will be open… (read more)

Radio 4 Case Notes Programme

The radio 4 medical programme Case Notes will be coming to the Queens Medical Centre in Nottingham on Thursday 30 July to record a programme on eczema and eczema research which will be broadcast on Tuesday 4 August. It is intended that Professor Williams, Sandra Lawton, Karin Koller and a SWET trial participant, and Amanda… (read more)

NSGCCE Awareness Day Thursday 17th September, 2009

NSGCCE Awareness Day Thursday 17th September, 2009 The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society’s Eczema Week 19 to 27 September 2009. The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is… (read more)

Ask the Expert – April 2009

Ask the Experts for April has now been published. The four questions this month are answered by Nurse Consultant Sandra Lawton. The first question is attracting a great deal of interest at the moment. It’s all about the use of bleach baths as a way of controlling eczema. To get your copy of the answer… (read more)

New Site Search Facility

Another facility has just been added to the website to make life a little easier to find what you are looking for. It is now possible to do a site search. On almost all pages at the top right is a search box and all you need to do is put in some search criteria…. (read more)

Grow your Own Drugs

“Grow your Own Drugs”, a real eczema story and BMJ short list Nottingham eczema team for award. All subjects in the latest update to What the Papers Say

Dr Ruth Murphy completes our team profiles

Within the Nottingham Support Group for Carers of Children with Eczema we have direct access to some very skilled people who have devoted their lives to the cause. We have now completed all profiles with the inclusion of Dr Ruth Murphy. You can review all our team profiles from the Profiles page.

Eczema team shortlisted for BMJ Group Award

The Centre of Evidence-Based Dermatology ( CEBD ), which is based at The University of Nottingham, which has an international reputation for skin research and evidence-based practice, has been short listed for an award from the British Medical Journal. They are amongst five leading research groups that have been short listed in the category for… (read more)

March Newsletter

Today saw the publication of our March Newsletter. Loads of useful information from all sort of places. Join the email alert service to get your personal copy delivered right to your inbox.

NSGCCE Twitter Launch

Today we have launched on “Twitter” under the user name of “eczemasupport”.For those that are unfamiliar with the service that it provides, Twitter is a social networking and micro-blogging service that allows its users to send and read other users’ updates (known as tweets), which are text-based posts of up to 140 characters in length…. (read more)

Current Research Update II

Helen Nankervis of the Center of Evidence Based Dermatology at the Queens Medical Centre in Nottingham, has submitted a summary of her work which looks at “Prioritising research questions and reducing uncertainties in the treatment of people with eczema”. This study is part of a grant from the National Institute of Health Research for 5… (read more)

New Site Features

Thanks to Amanda for coming up with the ideas for our site. Because of her efforts, we are now able to bring you yet another service. “What the Papers Say” is a service that will bring the papers to you. When we find anything of note being reported in the press, we will publish the… (read more)

Current Research Update

Dr Sinead Langan of the Queens Medical Centre Nottingham has submitted a summary of her work into what environmental factors cause “flares” of eczema. This study makes some interesting observations in exposure to 7 conditions and a 3°C change in temperature. Click here to see her findings.

Ask the Experts

In our bid for continual improvement, our local eczema team has agreed to try and answer your questions. Each month a member of the team will pick some of the best questions and share the answers online so that others can benefit from the information. These answers will first be published in the email alert… (read more)

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