Posts filed under NSGCCE

Summer Eczema’s Rears its Ugly Head

So since my Summer Eczema has decided to rear its ugly head again, I thought I’d share some tips for anyone dealing with the same thing. Eczema seems to be particularly common for people with allergies too. moisturize as often as possible. Before bed, when you wake up, after a bath/shower, throughout the day. Carry… (read more)

Eczema care for those with Autism

Webmasters Comment: The following post has been written by our own Amanda Roberts and Colette O’Sullivan. Both Amanda and Colette are on the CEBD (Centre of Evidence Based Dermatology) patient panel.  This post should be read in conjunction with our disclaimer which can be found at http://www.nottinghameczema.org.uk/disclaimer.aspx Children with autism can find treatments for eczema extremely… (read more)

Bleach Bath and Eczema

Webmasters Comment: The following post has been written by Nicola Housam who is a Dermatology Advanced Nurse Practitioner at Boston’s Pilgrim Hospital. The views expressed are her own and great care should be taken if you wish to try this process. If you are unsure then professional guidance should be sought. This post should be… (read more)

Ellie – Letting go….. a little

Ellie has had skin and health problems from birth.  During her early years, I have been a helicopter mum in respect of her health, mainly because  there were a lot of unanswered questions and I didn’t know what do for the best or what to expect.  I documented everything, took photos of every reaction and… (read more)

Using A European Salt Room

I first went to the salt room last December and after about three sessions of an hour each my respiratory system seemed to have changed completely. I felt a lot better and needed my inhaler less often. I got the impression that the itching on my skin decreased but the effects in that respect were… (read more)

I’m 30, stressed and exhausted ….

Today is May 15th and is one day after my 30th Birthday. Arriving at the private clinic it’s like an old manor house, certainly not what I’m used to. I’ve been to the doctors this morning to get my referral letter which looks a bit under cooked in terms of my visits to the GP…… (read more)

An Itchy Sleep

Tonight I am staying at a different house. I’m sharing a bed with Ellie. It’s 1am and for the last 2 hours, I have been watching her sleep. Sleep should be her sanctuary. It’s that crucial time for your mind and body to restore itself. A 4 year old should be having dreams of rainbows… (read more)

Getting the most out of your GP Consultation

Getting the most out of your GP consultation is so important. They are your front line gateway to the next level of care if needed. In the early days of Ellie’s journey, I assumed that the GP would have all of the answers and be in the position to fix the problems and give us… (read more)

Ellie’s Journey to School

My daughter starts school in September 2016. The months are whizzing past and I feel totally unprepared for her to be released independently to the world. I’m very protective over my little darling, all mums are. The thing that scares me the most is I am sending her into an environment that I no longer… (read more)

Miracle Cures …

Miracle cures.  The Internet  is awash with lotions and potions which offer to work their magic spell and banish skin complaints into oblivion.   I’ve tried most of them, they didn’t work for my daughter.  So, I was left out of pocket and feeling quite despondent and sadly my daughter who was used as a… (read more)

Ellie’s Story

Ellie was born on 20th September 2011 via c-section.  She was a healthy baby with mild skin issues which deteriorated once I finished breast feeding when she was 6 or 7 weeks old. Ellie experienced her first flare up then and I had never seen anything like it in my life.  Her poor beautiful face… (read more)

Jo’s Story

I am a struggling 39 year old with a 2 year old baby girl, a mum who is recovering from cancer both lung and breast, and my skin has gone crazy. I have had the dreaded eczema for 37 years, I have tried Chinese herbs, oil of evening primrose, light treatment, steroid creams, tablets, antihistamines… (read more)

Cold Turkey

Webmaster’s Note: NSGCCE does not recommend stopping topical steroid treatment without close medical support. If you intend to do this then the responsibility for the outcome rests with you, totally. The NSGCCE nor any of its contributors or associates will accept any liability whatsoever.  When I contacted you, you suggested that we saw a dermatologist… (read more)

Itchbusters

You’ve got a killer itch. Worse, it’s The Itch. It’s driving you insane. The urge overcomes you and you go for it. But sometimes your fingernails just aren’t enough, and you turn to external help. But what? What do you turn to in a desperate, and ultimately self-destructive attempt to silence the screams of The… (read more)

Erica’s Story

Two years ago while a sophomore in college I developed eczema. I can’t quite remember exactly when I started itching and scratching in the shower but I do remember how uncomfortable and irritable I was during the time. The eczema started at my neck and worked its way to my face and hands. By the… (read more)

Eczema Priority Setting Partnership – Update

 In 2011 the Eczema Priority Setting Partnership got underway. Eczema is a common condition yet there are numerous uncertainties in its treatment. More research is needed on how to treat the condition effectively, but it is unusual for patients and clinicians to set the research agenda. In order to involve both those who have eczema,… (read more)

Spoken advice for those living with eczema

Got tips about living with eczema which you want to pass on to others?  We are starting a collection of audioboos (http://audioboo.fm/) and this is our first one, recorded by Amanda, about Pregnancy and Eczema.  If you want to join in, you can send your own audioboos to @eczemasupport. ‘Eczema and Pregnancy’

NSGCCE Website Relaunch

Just before Christmas our website was re-launched. It was something that needed to be done because over recent months it became harder and harder to maintain and the only way around this was to start again. Some things have gone and others improved. We hope that you like the changes. Please let us know what… (read more)

Sandra Lawton appointed to NICE Quality Standard Topic Expert Group (TEG) for Eczema in Children

Dermatology Nurse Consultant Sandra Lawton has been appointed to the NICE Quality Standard Topic Expert Group (TEG) for Eczema in Children. She previously worked on the NICE Guidelines for Children with Eczema in 2007 which will form the foundation for this next piece of work. The TEG group membership includes dermatologists, nurses, GP, pharmacist, patient… (read more)

A new mother’s eczema

I have had eczema since being a baby in the usual places, creases in the arms and legs and face but from what I can personally remember it was bad at the age of 8 years old and awful to live with at the age of 13 years old. Like any average teenage girl I… (read more)

Charities, Jeans & Showers: The Good, Bad and the Ugly

Here I describe a few of my wintertime eczema experiences. I hope it helps you in some way 🙂 I suffer with eczema. I suffer with it even more when the weather changes from hot to cold or vice versa. Firstly my face starts to get really dry and cracked and especially around my mouth…. (read more)

A Tale of Two Claims

This week marks the end of a fight with the Department for Work and Pensions, nee Benefits Agency. I wish I could say the war was done, but still we fight the DWP’s decision regarding our daughter’s care needs. Her tribunal is in the next week… Last year, on-top of my IBS and ME/CFS, I… (read more)

New Allergy Information Leaflet Series

We are pleased to announce that we have another new service for you to get to grips with. Nottingham Children’s Hospital have produced a series of eight great information leaflets that deal exclusively with allergies. These leaflets compliment our own Patient Information Leaflets very well. To get access to them right now, go to the… (read more)

Welcome to a New Team Member

We have a new member on the team. Priya Mulji is a social network addict and has agreed to look after our latest site enhancement which is a presence on Facebook. If you have something you want to say then say it! You have so many ways to be heard now, don’t hold back! We… (read more)

NSGCCE follower raises funds for National Eczema Society

One of our twitter followers has walked 630 miles to raise money for the National Eczema Society. On Good Friday, 22nd April 2011, a team of intrepid walkers led by Stephen and Roddy Jenkins, set out from the West Somerset resort of Minehead, on a walk skirting the South West coast. The team is undertaking… (read more)

Eczema Treatments Priority Setting Partnership

If you, or someone close to you, are one of the almost 6 million eczema sufferers in the UK you know first hand the challenges associated with living with this unpredictable, painful and incurable condition. Exacerbated by a lack of research into available and effective treatments, one of the most frustrating aspects of eczema remains… (read more)

A sad poem about Allergies and Eczema

This is a very sad poem that I wrote in 2008 when my skin and allergies were particularly raw. I am happy to report my skin is so much better but I thought it might sound familiar to some of you. Just stop scratching By Ruth Holroyd The itch is consuming It takes over my… (read more)

Results of the Softened Water Eczema Trial (SWET) are now available

The results of the Softened Water Eczema Trial have now been released and are available on line. This trial has been going now for four years so well done to all those involved and whose time and effort directly affect the ongoing well being of eczema sufferers. To each of you a massive Thank You.

Ciclosporin has improved my eczema quite considerably

Please allow me to introduce myself. My name is Huw, I’m 42 years old, and I work in primary healthcare. I’ve suffered from eczema for as long as I can remember, and spent several months in hospital, several times, because of it when I was younger. Around eighteen months ago, I went to my GP… (read more)

The teenage girls guide to looking beautiful

Ok, so I was about 14 when my eczema got really bad. Mother was in a frenzy. Nobody knew what to do and everyone was stressed out because I was stressed out. My poor family. GCSE’s were approaching so that added extra stress. In all those moments I just wanted someone to hold me and… (read more)

Eczema and Bullying

When I was in primary school I used to get bullied by people I called my ‘friends’. They weren’t but I was extremely naive and, like most other kids in primary school I wanted to be popular and liked by everyone. Little did I know that being ‘best’ friends with the ‘in’ crowd would make… (read more)

You are amazing and you are beautiful …

I have always suffered from mild Eczema on my arms. When I was about 14 it became uncontrollable. It was really distressing experience, very painful and traumatic. There were days I would not want to just hide, not get out of bed and bury myself from the world. 3 showers a day to stop the… (read more)

An Interesting Difference – Reactions to Illness

As you may be aware, I suffer from Chronic Fatigue Syndrome/ME and Irritable Bowel Syndrome. These are “invisible illnesses” – the symptoms aren’t visible to you. I don’t have a missing arm, I don’t have lesions all over my face, and to look at me you’d probably think I’m just really hung-over. I’d gotten used… (read more)

Monkey Massage

Our youngest daughter, now four, contracted pneumonia when she was eight months old. My wife and three children were on holiday in Cornwall when she was taken ill. The condition worsened and developed into bronchiolitis, and she was taken into hospital where she was given antibiotics and placed on oxygen for four days and nights…. (read more)

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