Posts filed under Twitter

Spoken advice for those living with eczema

Got tips about living with eczema which you want to pass on to others?  We are starting a collection of audioboos (http://audioboo.fm/) and this is our first one, recorded by Amanda, about Pregnancy and Eczema.  If you want to join in, you can send your own audioboos to @eczemasupport. ‘Eczema and Pregnancy’

NSGCCE Website Relaunch

Just before Christmas our website was re-launched. It was something that needed to be done because over recent months it became harder and harder to maintain and the only way around this was to start again. Some things have gone and others improved. We hope that you like the changes. Please let us know what… (read more)

A Tale of Two Claims

This week marks the end of a fight with the Department for Work and Pensions, nee Benefits Agency. I wish I could say the war was done, but still we fight the DWP’s decision regarding our daughter’s care needs. Her tribunal is in the next week… Last year, on-top of my IBS and ME/CFS, I… (read more)

Welcome to a New Team Member

We have a new member on the team. Priya Mulji is a social network addict and has agreed to look after our latest site enhancement which is a presence on Facebook. If you have something you want to say then say it! You have so many ways to be heard now, don’t hold back! We… (read more)

NSGCCE follower raises funds for National Eczema Society

One of our twitter followers has walked 630 miles to raise money for the National Eczema Society. On Good Friday, 22nd April 2011, a team of intrepid walkers led by Stephen and Roddy Jenkins, set out from the West Somerset resort of Minehead, on a walk skirting the South West coast. The team is undertaking… (read more)

Spring Fundraising

My name is Roddy Jenkins and I have eczema. As a sufferer practically all my life of mild to severe atopic eczema – undergoing various treatments of creams, ointments, emollients, oral medication and several hospital stays – I decided that I wanted to help raise people’s awareness of this skin complaint. They say the skin… (read more)

Climb Aboard The Itchy Scratchy Express

What do I know about eczema? Well, not an awful lot to be fair… I know how to live with it. I know some of the things that trigger my eczema and i am 100% confident that I could still dream up ways to scratch even if you took away my hands, arms and toes!… (read more)

Amanda talks to Heart 106 about Twitter

Our very own Amanda Roberts recently had an interview with Nottingham local radio Heart 106 where she spoke about her very successful Twitter service. You can listen to that interview right now on our podcast page.

We’ve Done It

Congratulations have to go to Amanda who has just achieved her 1000th follower on her very successful Twitter pages. Her next goal, which we fully expect her to break, and very soon, is the 6000 tweets. Only 23 to go. Well done Amanda. After a flurry of activity from Belarus, The Cook Islands and Zambia… (read more)

NSGCCE Twitter Launch

Today we have launched on “Twitter” under the user name of “eczemasupport”.For those that are unfamiliar with the service that it provides, Twitter is a social networking and micro-blogging service that allows its users to send and read other users’ updates (known as tweets), which are text-based posts of up to 140 characters in length…. (read more)

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