Posts filed under Stories

Ellie – Letting go….. a little

Ellie has had skin and health problems from birth.  During her early years, I have been a helicopter mum in respect of her health, mainly because  there were a lot of unanswered questions and I didn’t know what do for the best or what to expect.  I documented everything, took photos of every reaction and… (read more)

I’m 30, stressed and exhausted ….

Today is May 15th and is one day after my 30th Birthday. Arriving at the private clinic it’s like an old manor house, certainly not what I’m used to. I’ve been to the doctors this morning to get my referral letter which looks a bit under cooked in terms of my visits to the GP…… (read more)

An Itchy Sleep

Tonight I am staying at a different house. I’m sharing a bed with Ellie. It’s 1am and for the last 2 hours, I have been watching her sleep. Sleep should be her sanctuary. It’s that crucial time for your mind and body to restore itself. A 4 year old should be having dreams of rainbows… (read more)

Getting the most out of your GP Consultation

Getting the most out of your GP consultation is so important. They are your front line gateway to the next level of care if needed. In the early days of Ellie’s journey, I assumed that the GP would have all of the answers and be in the position to fix the problems and give us… (read more)

Ellie’s Journey to School

My daughter starts school in September 2016. The months are whizzing past and I feel totally unprepared for her to be released independently to the world. I’m very protective over my little darling, all mums are. The thing that scares me the most is I am sending her into an environment that I no longer… (read more)

Miracle Cures …

Miracle cures.  The Internet  is awash with lotions and potions which offer to work their magic spell and banish skin complaints into oblivion.   I’ve tried most of them, they didn’t work for my daughter.  So, I was left out of pocket and feeling quite despondent and sadly my daughter who was used as a… (read more)

Ellie’s Story

Ellie was born on 20th September 2011 via c-section.  She was a healthy baby with mild skin issues which deteriorated once I finished breast feeding when she was 6 or 7 weeks old. Ellie experienced her first flare up then and I had never seen anything like it in my life.  Her poor beautiful face… (read more)

Jo’s Story

I am a struggling 39 year old with a 2 year old baby girl, a mum who is recovering from cancer both lung and breast, and my skin has gone crazy. I have had the dreaded eczema for 37 years, I have tried Chinese herbs, oil of evening primrose, light treatment, steroid creams, tablets, antihistamines… (read more)

Cold Turkey

Webmaster’s Note: NSGCCE does not recommend stopping topical steroid treatment without close medical support. If you intend to do this then the responsibility for the outcome rests with you, totally. The NSGCCE nor any of its contributors or associates will accept any liability whatsoever.  When I contacted you, you suggested that we saw a dermatologist… (read more)

Itchbusters

You’ve got a killer itch. Worse, it’s The Itch. It’s driving you insane. The urge overcomes you and you go for it. But sometimes your fingernails just aren’t enough, and you turn to external help. But what? What do you turn to in a desperate, and ultimately self-destructive attempt to silence the screams of The… (read more)

Erica’s Story

Two years ago while a sophomore in college I developed eczema. I can’t quite remember exactly when I started itching and scratching in the shower but I do remember how uncomfortable and irritable I was during the time. The eczema started at my neck and worked its way to my face and hands. By the… (read more)

A new mother’s eczema

I have had eczema since being a baby in the usual places, creases in the arms and legs and face but from what I can personally remember it was bad at the age of 8 years old and awful to live with at the age of 13 years old. Like any average teenage girl I… (read more)

Charities, Jeans & Showers: The Good, Bad and the Ugly

Here I describe a few of my wintertime eczema experiences. I hope it helps you in some way 🙂 I suffer with eczema. I suffer with it even more when the weather changes from hot to cold or vice versa. Firstly my face starts to get really dry and cracked and especially around my mouth…. (read more)

A Tale of Two Claims

This week marks the end of a fight with the Department for Work and Pensions, nee Benefits Agency. I wish I could say the war was done, but still we fight the DWP’s decision regarding our daughter’s care needs. Her tribunal is in the next week… Last year, on-top of my IBS and ME/CFS, I… (read more)

Ciclosporin has improved my eczema quite considerably

Please allow me to introduce myself. My name is Huw, I’m 42 years old, and I work in primary healthcare. I’ve suffered from eczema for as long as I can remember, and spent several months in hospital, several times, because of it when I was younger. Around eighteen months ago, I went to my GP… (read more)

The teenage girls guide to looking beautiful

Ok, so I was about 14 when my eczema got really bad. Mother was in a frenzy. Nobody knew what to do and everyone was stressed out because I was stressed out. My poor family. GCSE’s were approaching so that added extra stress. In all those moments I just wanted someone to hold me and… (read more)

Eczema and Bullying

When I was in primary school I used to get bullied by people I called my ‘friends’. They weren’t but I was extremely naive and, like most other kids in primary school I wanted to be popular and liked by everyone. Little did I know that being ‘best’ friends with the ‘in’ crowd would make… (read more)

You are amazing and you are beautiful …

I have always suffered from mild Eczema on my arms. When I was about 14 it became uncontrollable. It was really distressing experience, very painful and traumatic. There were days I would not want to just hide, not get out of bed and bury myself from the world. 3 showers a day to stop the… (read more)

An Interesting Difference – Reactions to Illness

As you may be aware, I suffer from Chronic Fatigue Syndrome/ME and Irritable Bowel Syndrome. These are “invisible illnesses” – the symptoms aren’t visible to you. I don’t have a missing arm, I don’t have lesions all over my face, and to look at me you’d probably think I’m just really hung-over. I’d gotten used… (read more)

Monkey Massage

Our youngest daughter, now four, contracted pneumonia when she was eight months old. My wife and three children were on holiday in Cornwall when she was taken ill. The condition worsened and developed into bronchiolitis, and she was taken into hospital where she was given antibiotics and placed on oxygen for four days and nights…. (read more)

Anna’s Referral Story

I’m Anna Burton and have met you [Amanda] at support group meetings when they used to be held and I went to the eczema open day last September. Both my children Daniel and Abigail are under Sandra and we are regular visitors to her. Both children suffered with eczema from within weeks of birth but… (read more)

Are our NHS GPs failing us?

When we or our children are diagnosed with Eczema, it can almost seem like an isolated experience. When you feel that uncontrollable urge to itch and non-eczema sufferers do not seem to get why you can’t “just stop”. It can also be a depressing experience not only for aesthetic reasons and your self esteem but… (read more)

Spring Fundraising

My name is Roddy Jenkins and I have eczema. As a sufferer practically all my life of mild to severe atopic eczema – undergoing various treatments of creams, ointments, emollients, oral medication and several hospital stays – I decided that I wanted to help raise people’s awareness of this skin complaint. They say the skin… (read more)

Comments from a Teenage Eczema Sufferer

Here are my comments/notes on the Teenage Eczema Pamphlet • The layout and everything is really good, and • You’ve put in all the right headings Also, just in case you want an opinion from someone who suffers from eczema as a teen: Take Control Fortunately I’ve had a lot of help with this area… (read more)

The Itchy & Scratchy Show

My oldest son has had eczema for the whole of his life – 10 years. Today’s visit to the doctor has prompted me to write this blog as I feel the need to offload a little about how frustrated I am and how much of a failure I feel for not being able to save… (read more)

A Girl’s Wedding Day

So the moment came that every girl waits for…many years of mental preparation via Disney…yes you are right girlies! I am getting married! now apart from all the obvious I have to plan, every woman knows that the most important aspect of the day for us is the DRESS!! Last thing any girl (should say… (read more)

Eczema and Confidence

Eczema affects confidence. Fact. In fact I’ll go as far to say the amount of eczema I have is directly proportional to the lack of confidence I have. It dictates how well I sleep, how well I feel, what mood I’m in and what I wear. On the back of this I have been known… (read more)

You’re not really allergic to that…

I do like to rant every now and then… This time, it’s about my food intolerance to wheat/gluten. I live a wheat free life style because after blood tests the docs told me I shouldn’t eat wheat, to be honest I don’t actually know if eating wheat affects my eczema that much but since I’ve… (read more)

I’ve been itching to share this!! (Expect many, many, more bad eczema related puns)

Recently I came to have an epiphany of sorts… in a nutshell my eczema was so bad I was in hospital for 3 days for treatment and recovery. That was my second visit in 4 months and a rather big wake up call as it was the worst flare up I’ve had since childhood! That… (read more)

Climb Aboard The Itchy Scratchy Express

What do I know about eczema? Well, not an awful lot to be fair… I know how to live with it. I know some of the things that trigger my eczema and i am 100% confident that I could still dream up ways to scratch even if you took away my hands, arms and toes!… (read more)

Rant “Eczema isnt a real illness”

You try living with it for ONE day… One day I challenge you! It’s not other peoples fault that they have this attitude because they don’t know any better but boy does it annoy me that A LOT of people don’t count Eczema as a serious illness. Where do I start with this rant? I… (read more)

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