Wednesday, December 26, 2012

NSGCCE Website Relaunch

Today our website has been re-launched and is a vast improvement on the old. Over recent months it became harder and harder to maintain and the only way around this was to start again. Some things have gone and others improved. We hope that you like the changes. Please let us know what you think. All the emails and web addresses still work so you can just carry on as normal. Amanda is still on Twitter so you still have direct contact with us and, through us, to the professionals. Our thanks to everyone involved, especially to Amanda for guiding the project, Chin Ling for doing all the conversion work and to the University of Nottingham for all the help and assistance they provided.

Now that we have a new home for our website, some of the links in the blog may not work. I am going through each entry as quickley as I can, newest to oldest, to find the broken links but this takes time. If there is information that you need now and it is behind a broken link then please let me know at webmaster@nottinghameczema.org.uk and I will jump it up the list.

Posted by Colin Gibb : Web Address http://www.nottinghameczema.org.uk at 5:27 PM
Edited on: Wednesday, December 26, 2012 5:31 PM
Topic(s): NSGCCE, Posts from Colin, Site Improvements

Sunday, August 07, 2011

New Allergy Information Leaflet Series

We are pleased to announce that we have another new service for you to get to grips with. Nottingham Children’s Hospital have produced a series of eight great information leaflets that deal exclusively with allergies. These leaflets compliment our own Patient Information Leaflets very well. To get access to them right now, go to the Allergy Information Leaflet page and download them today.

Tuesday, June 07, 2011

Welcome to a New Team Member

We have a new member on the team. Priya Mulji is a social network addict and has agreed to look after our latest site enhancement which is a presence on Facebook. If you have something you want to say then say it! You have so many ways to be heard now, don't hold back! We have a route for everyone, Email, Twitter, Blog or Facebook. You choose.

NSGCCE follower raises funds for National Eczema Society

One of our twitter followers has walked 630 miles to raise money for the National Eczema Society. On Good Friday, 22nd April 2011, a team of intrepid walkers led by Stephen and Roddy Jenkins, set out from the West Somerset resort of Minehead, on a walk skirting the South West coast. The team is undertaking the walk in an effort to raise a massive £10,000 for the National Eczema Society and help them to facilitate and support research into this skin condition.

Over the last goodness knows how many months, Roddy (@RoddyJenkins) has been tweeting a lot with our own Amanda Roberts (@eczemasupport) about this feat of endurance. Roddy Jenkins has suffered all his life from chronic eczema (“boiling of the skin”) which, for him, has meant skin breakdown, immune system complications, a variety of allergies and much suffering along the way. Roddy is also partially sighted.

Stephen (Roddy’s father) and Roddy completed this eppic march on 31 May 2001 after 40 days and averaging about 16 miles a day. If you would like to help Stephen and Roddy by donating, you can do this from Roddy's fundraising page at http://www.justgiving.com/Roddy-Jenkins. They are over half way to the £10,000 target. Every pound raised will help to fund much needed research. We wish them both all the very best in this huge challenge. To review their progress reports and itinerary just go to the National Eczema Society's website.

Minehead 630 miles

Sandra Lawton wins Prestigious University Award

Sandra with Geoff Randel and the Vice Chancellor

Sandra Lawton has won a ‘Recent Graduate’ award from the University of Nottingham. Sandra was presented with the award at the 2011 Alumni Laureate Awards at the East Midlands Conference Centre on Saturday 7 May by the Vice Chancellor for Nottingham Trent University, Professor David Greenaway.

Each year, the university recognises the achievements of former students who have gone on to achieve great things in their chosen career. Sandra, who has worked at the Queen’s Medical Centre of NUH for over 23 years, said: “The nomination and actually receiving such a prestigious award has made me feel very humble, especially as it is for something I love and do on a daily basis. “To receive this alongside such eminent award winners made the evening very special. It was wonderful to have my family who have lived and breathed dermatology for over 20 years there, alongside colleagues from the University of Nottingham, NUH and parents from the Nottingham Eczema Support Group. “Hearing what they and other colleagues had to say on video was very emotional and I think my speech reflected that. Words cannot say how delighted I was to receive the award, which is recognition for not only what I have done but all those who have been part of my nursing journey.”

The whole event was hosted by Jeff Randall, a former Nottingham Economics graduate and who currently presents "Jeff Randall Live" for Sky TV. There is also a full press release available from Nottingham University. Just Click here to view it.

Eczema Treatments Priority Setting Partnership

If you, or someone close to you, are one of the almost 6 million eczema sufferers in the UK you know first hand the challenges associated with living with this unpredictable, painful and incurable condition.

Exacerbated by a lack of research into available and effective treatments, one of the most frustrating aspects of eczema remains the process of trial and error required to design and implement an effective treatment regime to both strengthen the skin barrier and manage the inflammation, redness and incessant itch.

As part of its commitment to improving patient care in the UK, the National Eczema Society is therefore calling on sufferers across the country to draw on their own experience of eczema this summer to help shape future treatment research. The Eczema Treatment Prioritisation Exercise is being run by the highly regarded University of Nottingham and the James Lind Alliance. By means of a two part survey, the objective is to identify questions that patients, carers and health professionals think are important about eczema treatments which have not yet been researched and then to establish which of those questions need to be answered as a priority.

Respondents are initially asked to submit up to five questions that they would like answering on the treatment of eczema. These results will then be collated and respondents invited to rank the most frequently asked questions in order of importance to them. The top ten questions, as identified and ranked by respondents, will subsequently be developed into research proposals.

Chief Executive of the National Eczema Society, Margaret Cox, feels this is a crucial step forward in addressing the issue of eczema in the UK. “With the such a huge number of eczema sufferers in the UK, the need for greater understanding of existing treatments and how best to employ them is vital to the successful management of what can be a lifelong condition. There remains a significant lack of evidence in this field and we aim to help address the issue this summer with the support of both patients and their carers. By putting the patient at the heart of the research process and identifying which questions are of most importance to them we can help to ensure that precious research funding is directed towards providing the answers that would have the most impact on both sufferers and those who care for them.”

If you would like to be involved in shaping the future of eczema research you can either complete the short survey online at http://www.homeforeczema.org/ or, if you do not have internet access, you can request a paper version from the National Eczema Society's helpline on 0800 089 1122. The survey will be available to complete until the end of July with the results of the project due to be published in Spring 2012. This is a major oportunity to have your say and to influence the decision makers over which research projects they undertake. The results of this exercise will determine current uncertainties in the treatment of eczema and the information gained will be used to guide the design of future eczema research projects and research funding opportunities.

Please, if you can, complete the survey. It is so important and will affect which research projects are undertaken over the coming years. If you would like to take part in this exercise, please click the panel on the home page of the H.O.M.E website that asks "Do you have unanswered questions about the treatment of eczema?" Your time will count for a lot. Thank you.

Tuesday, February 15, 2011

Results of the Softened Water Eczema Trial (SWET) are now available

The results of the Softened Water Eczema Trial have now been released and are available on line. This trial has been going now for four years so well done to all those involved and whose time and effort directly affect the ongoing well being of eczema sufferers. To each of you a massive Thank You.

Wednesday, October 06, 2010

Audio PILs Now Available as mp3 Download

Patient Information Leaflet Audio Number 6 has now been released & we have now made all Audio PILs available as an MP3 file for downloading. This means that you can take them with you wherever you roam. Wether you listen on an mp3 player or an iPhone/iPod/iPad or even if you have printed out the pdf version, the information you need will be right there when you need it.

A.PIL1 discusses Allergy Tests for Atopic Eczema

A.PIL2 discusses Atopic Eczema and Infections

A.PIL3 discusses Atopic Eczema and Steroid Cream

A.PIL4 discusses Atopic Eczema Sun Holidays and Fun

A.PIL5 discusses Children Newly Diagnosed with Eczema

A.PIL6, discusses the effects of winter on eczema and provides 10 top tips for coping with eczema in winter.

Posted by Amanda Roberts : Web Address http://www.nottinghameczema.org.uk at 1:12 PM
Edited on: Wednesday, October 06, 2010 1:26 PM
Topic(s): NSGCCE, Patient Information Leaflets (PIL's), Posts from Colin

Tuesday, July 20, 2010

Sandra wins prestigious Stone Award

Sandra Lawton has been presented with the prestigious Stone Award, by the British Dermatological Nursing Group, for her contribution to dermatology nursing in the UK over 23 years, all of it based at the Queens Medical Centre site in Nottingham. During this time her practices have be adopted throughout the UK. Sandra is the ninth winner of the award. To see the full press release, click here. Well done Sandra, you deserve it.

Whatever else we do we have the quality support staff to back it all up, and that is priceless. Help us to help you by passing on our site details.

Wednesday, June 16, 2010

More Video Podcasts

Today we have put in a new section under “Podcasts”. We have called it Sponsored Events and is a place where we can put either video or photos in the form of a slide show from you. If you undertake a sponsored event and you are collecting for eczema related charities then let us have whatever images you have taken with an overview of “who, what, where, when, why and how” and we will publish it. You can contact us using the contact button above or even via Twitter, find @eczemasupport and talk with Amanda.

Thursday, May 13, 2010

Audio Patient Information Leaflets Launch

Today we have great pleasure in launching our latest project, Audio Patient Information Leaflets (APILS). To compliment the current batch of printable PILS, we have started to transfer them into audio format. As this takes about 3 hours for each one they will be trickle fed onto the system so keep looking. The first three are available now.

Wednesday, March 31, 2010

Our researchers need you...

Have you heard of the FLAME study (Flares and Antibiotics in the Management of Eczema)?

This is a study which is aiming to establish whether some "infected" flares should be treated with antibiotics, or not.

NHS funded researchers based at the Universities of Bristol, Nottingham, Southampton and Portsmouth are working together to develop a study to find out how to best treat a child with eczema who has a "flare" of their condition. By flare, they mean that the eczema worsens despite using the regular treatments. One reason for this can be infection.

If you have one or more children with eczema, they really would like you to complete a short survey. They need as many people as possible to take part. Your answers will be important in helping decide how to study this particular problem.

There are 9 questions over 4 pages, and it should take no more than 10 minutes to answer them.

If you can help them, please go to the flame study survey site which can be found at:

https://www.survey.bris.ac.uk/primarycare/carersofeczema/

For any further information please email me at webmaster@nottinghameczema.org.uk or use the Contact Us page on the website.

Sunday, March 14, 2010

Welcome to the new website for the Nottingham Support Group for Carers of Children with Eczema

Its been a while in the making but now it’s here. We think that it is a real improvement on the old site format which had served us very very well since 18 July 2005. Over the years the site has been prodded and poked with bits being added and bits being taken away, all of which has led to quite an unwieldy administrative task just to maintain it. So, out with the old and in with the new. We have added a number of new features as well as keeping the old faithful's.

Today we have some new features to share:

The questions that have been asked of our experts over the last year and answered exclusively to those on the Email Alert Service. You really should be on it!

Video Podcasts. These are videos of interviews given about the effects of being an eczema sufferer

Our profiles pages have been updated

We also have a page dedicated to the NICE guidelines relevant to eczema

The RSS and Audio feeds have been brought into the site.

The menus have been redesigned as well. At the top of each page is the title and above that are the 5 main groups. Below the title are the pages in that group. This means that you are never more than 2 clicks away from any page on the site.

We have also incorporated some selected pages from the National Eczema Society

We hope that you will use our sit to its fullest and any feedback would be warmly welcomed. Feedback can be left via the Contact Us page.

Thank you for your continued support. It really is appreciated. To enter the site, please click the Home Page link above. Its the "N" in the banner.

Hywel Sandra Jane Ruth Liz June Amanda Colin

Thursday, February 25, 2010

New Eczema Study Is Looking For Pregnant Ladies

A new study into the use of emollients on babies from birth is being undertaken by the Centre of Evidence Based Dermatology at the University of Nottingham with the aim of finding out if such usage will prevent childhood eczema from developing. For this study lots of babies are needed. If you are pregnant and live in the East Midlands area and are interested in taking part or just learning more about the study, please contact the study manager, Jo Chalmers. Jo can be contacted by clicking here.

Thursday, February 18, 2010

NSGCCE wins N.I.C.E. Stakeholder Status

The NSGCCE was today confirmed as a stakeholder organisation for the “Food allergy in children” guideline which will be produced by the National Institute for Health and Clinical Excellence. This is a tremendous achievement for us and means that you will be able to comment on this guideline in due course. We will of course keep you informed but you may want to keep an eye open for the RSS feed and Blog as well as here on the web site.

Wednesday, January 27, 2010

Food Allergy in Children: Scope Consultation - Have your say ...

NICE have been asked to develop a clinical practice guideline on Food Allergy in Children for use in the NHS in England, Wales and Northern Ireland. The draft scope defines what aspects of care the guideline will cover and to whom it will apply. You need to feed your suggestions on the scope and may suggest clinical questions that could be answered in the guideline through any of the listed stakeholders – for instance AllergyUK
Posted by Colin Gibb : Web Address http://www.nottinghameczema.org.uk at 11:46 AM
Edited on: Wednesday, January 27, 2010 3:57 PM
Topic(s): N.I.C.E., NSGCCE, Posts from Colin

Tuesday, January 05, 2010

Winter Care Patient Information Leaflet

Today see's the publication of the latest Patient Information Leaflet. Written by Amanda and validated by the professional team, this leaflet gives 10 valuable tips on ways to look after your eczema during the winter months. Everything from Moisturisers to shampoos to sunscreens. PIL 28 - Caring for Eczema During Winter is here.

Thursday, December 17, 2009

New NSGCCE PIL is now available for Download

Our latest Patient Information Leaflet (PIL) is now available for download. This is the 27th PIL that we have produced and covers what to do when a child has just been diagnosed with eczema for the first time. You can get it for free from our Information Leaflets page.

Sunday, November 22, 2009

Amanda talks to Heart 106 about Twitter

Our very own Amanda Roberts recently had an interview with Nottingham local radio Heart 106 where she spoke about her very successful Twitter service. You can listen to that interview right now on our podcast page.

Monday, November 16, 2009

Congratulations to Professor Hywel Williams

Congratulations have to go to our own Professor Hywel Williams who has been appointed to a new national role to fund research that can bring improvements to health for the benefit of the patients of tomorrow. Professor Williams will become the new chair of the National Institute of Health Research, Health Technology Assessment (NIHR HTA) Commissioning Board. To see the full press release from the Nottingham University Hospitals NHS Trust Click Here.

Thursday, October 29, 2009

We’ve Done It

Congratulations have to go to Amanda who has just achieved her 1000th follower on her very successful Twitter pages. Her next goal, which we fully expect her to break, and very soon, is the 6000 tweets. Only 23 to go. Well done Amanda.

After a flurry of activity from Belarus, The Cook Islands and Zambia we have now broken another barrier. The 100 nations barrier. Excluding the home nation flags but not the United Kingdom, we have had visits from 101 nations around the world. Go and have a look at the Visitor Nations page for the full display of national flags.

To all our visitors from wherever you live, a very big Thank You for taking the time to look at our site, for embracing Amanda’s Twitter conversations so fantastically, for your subscriptions to the email alert service, your questions for the Experts and your wonderful support for our Awareness Day just a few weeks ago.

From the team - Hywel, Sandra, Amanda, Jane, Ruth and Colin

Wednesday, September 23, 2009

NSGCCE Awareness Day 2009 Update

An event aimed at educating both carers and healthcare professionals about eczema was held in the postgraduate building of the Queens Medical Centre in Nottingham on Thursday 17th September 2009 under the joint auspices of the Nottingham Support Group for Carers of Children with Eczema (NSGCCE) and Nottingham University Hospitals NHS Trust.

Stands included Current Research from the Centre of Evidence Based Dermatology (CEBD). The CEBD recently received funding from the National Institute of Health Research for a 5 year study into several skin diseases, including eczema. Joanne Chalmers, Study Manager for the BEEP Study (Barrier Enhancement for Eczema Prevention) and Helen Nankervis also from the CEBD attended. The BEEP study will be looking to see if the use of emollients from birth will prevent eczema in babies and Helen is working on updating an important systematic review of clinical trials for eczema.

The National Eczema Society (NES) was represented by John Fuller who came up from London on the day. John gave out all sorts of NES literature aimed at helping eczema sufferers.

Amanda Roberts, a parent, was promoting the N.I.C.E guidelines for eczema, CG57. Amanda has an interest here because she, along with Sandra Lawton, was on the committee assigned the task of drawing up the guidelines. Hard copies were made available to take away along with hard copies of the most popular Patient Information Leaflets (PIL’s) from the NSGCCE.

Elizabeth Buckely and June Jennings, Paediatric Dermatology nurses, from the childrens dermatology department, did a great job looking after the emollient stand giving demonstrations on how to apply and use emollients effectively. This proved to be a popular focal point for all those attending.

Colin Gibb, another parent, demonstrated the website and the latest enhancements he has made to it (www.nottinghameczema.org.uk). It is hoped that we will be able to launch the most recent innovation, video podcasts, before Christmas. This will fit very well alongside our last major upgrade, the audio podcasts.

During each half of the day there were 2 interactive sessions. Colin Gibb and Amanda Roberts kicked them off by giving a brief overview of some of the practicalities of living with eczema and this was followed up by an open forum hosted by Sandra Lawton, Nurse Consultant and Dr Jane Ravenscroft, Consultant Dermatologist.

Over the course of the day there was a steady stream of people, patients, parents and health care professionals, all keeping us busy in one way or another. They came to Nottingham from all over the local area (Nottingham, Leicester, Derby and further afield from Chester). The day was a huge success with an over whelming enthusiasm and buzz to share knowledge and experiences of working or living with eczema. As a result of this early success we are discussing the possibility of running it again next year. Watch this space.

Friday, September 11, 2009

Launch of the NSGCCE Tool Bar

We have just launched our latest free service. A toolbar for Internet Explorer, Firefox and Safari web browser users. By clicking the “Download Toolbar” button on our website you can install a toolbar that will give you instant access to our Podcasts, Newsfeed’s and Twitter services without being on site plus a lot lot more. Its available now and free. You can activate/deactivate it, install/uninstall it or add/remove components. Its under your total control.

Thursday, September 03, 2009

NSGCCE Awareness Day 2009

Just a reminder that our Eczema Awareness day is fast approaching. It will be held on 17th September, 2009 10-12 noon and 1pm-3pm at the The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital. Its going to be a fantastic day for all who attend and with access to the professionals how can you not come. Thats a rare treat in itself. If you need to know how to find us then the directions are available on on our Awareness Day page or if you want further information you can get in touch via our Contact Us page. If you can support us by displaying our poster, that would be most appreciated and is downloadable as a pdf file from the Awareness Day page. Click the link at the top of the page. We look forward to seeing you there.

Friday, August 28, 2009

PIL -The “Discoid” Pattern of Atopic Eczema

We have just launched the latest in our series of Patient Information Leaflets. The latest PIL is about Discoid Atopic Eczema. What it is and how it differs from ordinary atopic eczema. It is available now and can be downloaded free. Just go to the “Information Leaflets” page and click on “The Discoid Pattern of Atopic Eczema” for your copy.

Thursday, August 13, 2009

NSGCCE Email Alert Service - Podcasts

Following on from Professor Hywel Williams Radio Nottingham interview with John Holmes we are now able to bring you that interview and the BBC Radio 4 Case Notes programme in the form of podcasts. A podcast, for those that don't know, is a way of making available, via the internet, audio and visual material without the need for the individual to get specialist equipment or software to review it.

By going onto our website and clicking on the podcast icon located at the top left of most pages (its the purple figure next to the page title), you will be taken to a new podcast page. From here you will have two ways of using the audio:

1. Click on the green triangle under the podcast that you are interested in listening to. It should start up almost instantly. Please make sure that your computer speakers are switched on!

2. You can click on the purple podcast icon. This could display in a number of ways. If you get presented with a page that shows the file name, they will usually end in .mp3, click on it. Then, depending how your computer is set up, you will get the option to save it or it will start your default media player. If your media player starts you should be able to save the file by clicking ‘File > Save As’ on the menu bar. Once saved you will then be able to transfer it to your mp3 device and review it at a more convenient time and as often as you would like.

In the fullness of time it is hoped that we will be able to bring you more podcasts with information that will be of general interest to eczema sufferers and carers. In the meantime enjoy these very informative podcasts and if you have any feedback on any aspect of our services then please get in touch via our contacts page. We will be very pleased to hear from you.

NSGCCE Awareness Day Thursday 17th September, 2009

The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society's Eczema Week 19 to 27 September 2009. The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is the venue and it will be open to all who have an interest in eczema. On arrival you will find practical workshops demonstrating the use of emollients & topical corticosteroids, information about the National Eczema Society, NICE childhood eczema guidelines, current research and details of our support group activities. There will be doctors and nurses on hand to answer your questions as well as parents of children who suffer from eczema. It should be noted that answers would be in general terms only as we are unable to give individual consultations. For all the latest information please visit our website and have a look at the Awareness Day '09 page.

Wednesday, July 29, 2009

Radio 4 Case Notes Programme

The radio 4 medical programme Case Notes will be coming to the Queens Medical Centre in Nottingham on Thursday 30 July to record a programme on eczema and eczema research which will be broadcast on Tuesday 4 August. It is intended that Professor Williams, Sandra Lawton, Karin Koller and a SWET trial participant, and Amanda Roberts, one of our parents, will all be interviewed for the program. Case Notes is a medical programme exploring a different topic each week, with reports and input from experts. More information about the program can be obtained from the BBC Case Notes website.

NSGCCE Awareness Day Thursday 17th September, 2009

NSGCCE Awareness Day Thursday 17th September, 2009

The NSGCCE Eczema Awareness Day is to be held on Thursday 17th September, 2009 10-12 noon and 1pm-3pm and has been timed to coincide with The National Eczema Society's Eczema Week 19 to 27 September 2009.

The Post Graduate Education Centre, Queens Medical Centre, Nottingham University Hospital is the venue and it will be open to all who have an interest in eczema. On arrival you will find practical workshops demonstrating the use of emollients & topical corticosteroids, information about the National Eczema Society, NICE childhood eczema guidelines, current research and details of our support group activities. There will be doctors and nurses on hand to answer your questions as well as parents of children who suffer from eczema. It should be noted that answers would be in general terms only as we are unable to give individual consultations. For all the latest information please visit our website and have a look at the Awareness Day '09 page.

Friday, May 01, 2009

Ask the Expert - April 2009

Ask the Experts for April has now been published. The four questions this month are answered by Nurse Consultant Sandra Lawton. The first question is attracting a great deal of interest at the moment. It’s all about the use of bleach baths as a way of controlling eczema. To get your copy of the answer you need to subscribe to the NSGCCE Email Alert Service. The other three cover the eyes, sun block and antihistamines and how eczema is affected by them. So don't dilly dally, subscribe now and get your free Ask the Expert Advice for eczema.

Friday, April 24, 2009

New Site Search Facility

Another facility has just been added to the website to make life a little easier to find what you are looking for. It is now possible to do a site search. On almost all pages at the top right is a search box and all you need to do is put in some search criteria. Try it and see what happens! In this upgrade we have also improved the security code on the contact us page. I hope that you will agree it is a lot more human friendly than before.

Monday, April 20, 2009

Grow your Own Drugs

"Grow your Own Drugs", a real eczema story and BMJ short list Nottingham eczema team for award. All subjects in the latest update to What the Papers Say

Friday, March 27, 2009

Dr Ruth Murphy completes our team profiles

Within the Nottingham Support Group for Carers of Children with Eczema we have direct access to some very skilled people who have devoted their lives to the cause. We have now completed all profiles with the inclusion of Dr Ruth Murphy. You can review all our team profiles from the Profiles page.

Thursday, March 26, 2009

Eczema team shortlisted for BMJ Group Award

The Centre of Evidence-Based Dermatology ( CEBD ), which is based at The University of Nottingham, which has an international reputation for skin research and evidence-based practice, has been short listed for an award from the British Medical Journal. They are amongst five leading research groups that have been short listed in the category for Outstanding Achievement in Evidence Based Health Care. This is the team of professionals headed up by Professor Williams that you have access to through this web site! Click here for the nomination report.

Sunday, March 01, 2009

March Newsletter

Today saw the publication of our March Newsletter. Loads of useful information from all sort of places. Join the email alert service to get your personal copy delivered right to your inbox.

NSGCCE Twitter Launch

Today we have launched on “Twitter” under the user name of “eczemasupport”.For those that are unfamiliar with the service that it provides, Twitter is a social networking and micro-blogging service that allows its users to send and read other users' updates (known as tweets), which are text-based posts of up to 140 characters in length. Twitter is a free service that lets you keep in touch with people through the exchange of quick, frequent answers to one simple question: What are you doing? To see what is currently happening on our account you can click on the large letter ''T'' at the top of most pages on our website. . To take part you will need to sign up to the twitter service. You can do so at http://twitter.com/eczemasupport/. Lets get everyone talking.

Friday, February 27, 2009

Current Research Update II


Helen Nankervis of the Center of Evidence Based Dermatology at the Queens Medical Centre in Nottingham, has submitted a summary of her work which looks at “Prioritising research questions and reducing uncertainties in the treatment of people with eczema”. This study is part of a grant from the National Institute of Health Research for 5 years to conduct research into several skin diseases, including eczema. Click here to see her report

Tuesday, February 24, 2009

New Site Features

Thanks to Amanda for coming up with the ideas for our site. Because of her efforts, we are now able to bring you yet another service. “What the Papers Say” is a service that will bring the papers to you. When we find anything of note being reported in the press, we will publish the link here and in the email alert service. Click the link above to see what the papers are saying.

The really exciting news is that in the very near future (days I hope) we will be unveiling yet another complimentary service. This is a new position for us as it will be totally interactive. That's right, totally interactive. Watch this space. If you are not on the email alert service yet, just know that you need to be on it. You just do.

Monday, February 23, 2009

Current Research Update

Dr Sinead Langan of the Queens Medical Centre Nottingham has submitted a summary of her work into what environmental factors cause “flares” of eczema. This study makes some interesting observations in exposure to 7 conditions and a 3°C change in temperature. Click here to see her findings.

Thursday, February 05, 2009

Ask the Experts

In our bid for continual improvement, our local eczema team has agreed to try and answer your questions. Each month a member of the team will pick some of the best questions and share the answers online so that others can benefit from the information. These answers will first be published in the email alert system and then on this site. The first set of questions will be answered by Professor Williams in March. To ask your question go to the contact page then select "Ask the Experts" from the drop down menu.