Tuesday, June 07, 2011

Eczema Treatments Priority Setting Partnership

If you, or someone close to you, are one of the almost 6 million eczema sufferers in the UK you know first hand the challenges associated with living with this unpredictable, painful and incurable condition.

Exacerbated by a lack of research into available and effective treatments, one of the most frustrating aspects of eczema remains the process of trial and error required to design and implement an effective treatment regime to both strengthen the skin barrier and manage the inflammation, redness and incessant itch.

As part of its commitment to improving patient care in the UK, the National Eczema Society is therefore calling on sufferers across the country to draw on their own experience of eczema this summer to help shape future treatment research. The Eczema Treatment Prioritisation Exercise is being run by the highly regarded University of Nottingham and the James Lind Alliance. By means of a two part survey, the objective is to identify questions that patients, carers and health professionals think are important about eczema treatments which have not yet been researched and then to establish which of those questions need to be answered as a priority.

Respondents are initially asked to submit up to five questions that they would like answering on the treatment of eczema. These results will then be collated and respondents invited to rank the most frequently asked questions in order of importance to them. The top ten questions, as identified and ranked by respondents, will subsequently be developed into research proposals.

Chief Executive of the National Eczema Society, Margaret Cox, feels this is a crucial step forward in addressing the issue of eczema in the UK. “With the such a huge number of eczema sufferers in the UK, the need for greater understanding of existing treatments and how best to employ them is vital to the successful management of what can be a lifelong condition. There remains a significant lack of evidence in this field and we aim to help address the issue this summer with the support of both patients and their carers. By putting the patient at the heart of the research process and identifying which questions are of most importance to them we can help to ensure that precious research funding is directed towards providing the answers that would have the most impact on both sufferers and those who care for them.”

If you would like to be involved in shaping the future of eczema research you can either complete the short survey online at http://www.homeforeczema.org/ or, if you do not have internet access, you can request a paper version from the National Eczema Society's helpline on 0800 089 1122. The survey will be available to complete until the end of July with the results of the project due to be published in Spring 2012. This is a major oportunity to have your say and to influence the decision makers over which research projects they undertake. The results of this exercise will determine current uncertainties in the treatment of eczema and the information gained will be used to guide the design of future eczema research projects and research funding opportunities.

Please, if you can, complete the survey. It is so important and will affect which research projects are undertaken over the coming years. If you would like to take part in this exercise, please click the panel on the home page of the H.O.M.E website that asks "Do you have unanswered questions about the treatment of eczema?" Your time will count for a lot. Thank you.

Tuesday, February 15, 2011

Results of the Softened Water Eczema Trial (SWET) are now available

The results of the Softened Water Eczema Trial have now been released and are available on line. This trial has been going now for four years so well done to all those involved and whose time and effort directly affect the ongoing well being of eczema sufferers. To each of you a massive Thank You.

Wednesday, March 31, 2010

Our researchers need you...

Have you heard of the FLAME study (Flares and Antibiotics in the Management of Eczema)?

This is a study which is aiming to establish whether some "infected" flares should be treated with antibiotics, or not.

NHS funded researchers based at the Universities of Bristol, Nottingham, Southampton and Portsmouth are working together to develop a study to find out how to best treat a child with eczema who has a "flare" of their condition. By flare, they mean that the eczema worsens despite using the regular treatments. One reason for this can be infection.

If you have one or more children with eczema, they really would like you to complete a short survey. They need as many people as possible to take part. Your answers will be important in helping decide how to study this particular problem.

There are 9 questions over 4 pages, and it should take no more than 10 minutes to answer them.

If you can help them, please go to the flame study survey site which can be found at:

https://www.survey.bris.ac.uk/primarycare/carersofeczema/

For any further information please email me at webmaster@nottinghameczema.org.uk or use the Contact Us page on the website.

Thursday, February 25, 2010

New Eczema Study Is Looking For Pregnant Ladies

A new study into the use of emollients on babies from birth is being undertaken by the Centre of Evidence Based Dermatology at the University of Nottingham with the aim of finding out if such usage will prevent childhood eczema from developing. For this study lots of babies are needed. If you are pregnant and live in the East Midlands area and are interested in taking part or just learning more about the study, please contact the study manager, Jo Chalmers. Jo can be contacted by clicking here.

Friday, February 27, 2009

Current Research Update II


Helen Nankervis of the Center of Evidence Based Dermatology at the Queens Medical Centre in Nottingham, has submitted a summary of her work which looks at “Prioritising research questions and reducing uncertainties in the treatment of people with eczema”. This study is part of a grant from the National Institute of Health Research for 5 years to conduct research into several skin diseases, including eczema. Click here to see her report

Monday, February 23, 2009

Current Research Update

Dr Sinead Langan of the Queens Medical Centre Nottingham has submitted a summary of her work into what environmental factors cause “flares” of eczema. This study makes some interesting observations in exposure to 7 conditions and a 3°C change in temperature. Click here to see her findings.

Wednesday, May 21, 2008

Softened Water Eczema Trial

The Sofened Water Eczema Trial (SWET) is now looking for more volunteers to take part in this valuable piece of research into the effects of using softened water on eczema. If you live in the Lincoln or Leicester areas of the United Kingdom them please get in touch with Dr Karin Koller, the SWET Clinical Trial Manager via their web site at www.swet-trial.co.uk. For more information go to our Current Research page.

Wednesday, November 08, 2006

Request for Assistance

Do you have a child with eczema? Would you like to be involved in some research that is currently being undertaken by Dr Sinead Langan at the University Hospital in Nottingham? To see what she is up to, go to the Current Research page and if you would like to become involved then click on the envelope above and send an email to the webmaster giving a contact email address and your name and Dr Langan will be in touch. UK Residence only, Sorry America.